In 1963, Dr. Jerome Lejeune became the first person to research and describe the syndrome that eventually became known as Cri Du Chat (5p-minus Syndrome). However, the technology of that generation would only allow him and future researchers to scratch the surface of this rare genetic disorder that affects approximately 1 out of 15,000 to 50,000 live births a year. Over the 60 years since Dr. Lejeune’s discovery, it is estimated that nearly 4,000 babies have been born with Cri Du Chat. And that is where the story of the CDC Research Foundation begins. Discover more about us →
About CDC Syndrome
Each year, approximately 50 to 60 children in the United States are born with Cri Du Chat Syndrome, also known as 5p-minus. Learn more →
Join our 8th Annual
CDCRF CHARITY GOLF OUTING
Wednesday, May 14th, 2025 - An incredible event to raise funds to benefit research towards developing a treatment for Cri du Chat/5p Minus syndrome.. Find out the details →
Knowledge is Power
Research into CDC Syndrome can ensure that children with this condition can reach their absolute fullest potential. Discover the power of research →